Mum’s plea as son’s weight drops to two stone after not keeping food down
A Scottish-based mum from Lanarkshire is anxious her six-year-old is dramatically losing weight because of an illness and now weighs just two stone.
Young Joey Guild has been crying to his mum about how he doesn’t want to be “sick again” after months of not being able to keep food down.
Mum, Ashley Guild, told Glasgow Live: “He cries to me saying he doesn’t want to be sick anymore and there’s nothing I can do to help him.”
The boy was diagnosed with Stickler syndrome, which is a connective tissue disorder.
As a baby, he was on a feeding tube just days after being born, and his bowel had become “twisted” during a necessary operation at the Royal Hospital for Children in Glasgow.
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Throughout his childhood, Joey had to undergo operations including cleft palate repair and a fundoplication, which is the wrapping of the top part of the stomach around the lower oesophagus.
Joey is fed through a tube currently and attends a school for additional needs. But in June this year, he was found to have three blockages when he was meant to have a colonoscopy, meaning the procedure could not go ahead.
The six-year-old is unable to keep any food down and is in severe pain, his worried mother revealed. Despite medics trying an enema and 13 days of laxatives, Joey’s bowel was still full once again when he was taken for a recent biopsy.
Ms Guild said: “Apparently everything had come back clear but since then Joey’s health has gotten worse and his weight is dropping. He now only weighs two stone. He’s skin and bone.
“He’s so lethargic, he can sometimes become unresponsive. The school has phoned me to come to get him because he can’t lift his head off the table. They’re also really worried about his condition and have been close to taking him to hospital themselves.”
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The mum worries “it will be too late” by the time help is received. She added: “He has no quality of life like this but I’m getting no help. I just keep being told that nothing is wrong with him and that they won’t change his medication.”
A spokesperson for NHS Greater Glasgow and Clyde said: “Due to confidentiality, we cannot comment on individual patient cases.
“We are satisfied that the care provided was appropriate and we are sorry to hear that this child’s family are unhappy. We encourage them to reach out to us directly if they would like to discuss further.”
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